National Parkinson Foundation
Nat'l. Hdqtrs. 1501 N.W. 9th,Bob Hope Rd., Miami,FL 33136-1494
Toll free national # 1-800-327-4545, in Florida 1-800-433-7022
California office 4929 Wilshire Blvd.,Suite 945, Los Angeles,CA 90010
Toll free in CA 1-800-400-8448
New York office 122 East 42nd St, Suite 2806, NYC 10017
Call for many free pamphlets or info regarding resources.
American Parkinson Disease Assn,Inc.
1250 Hylan Blvd., Suite 4-B
Staten Island, NY 10305
Offers many free booklets about all aspects of PD, including a handbook for
patients and families and a handbook written specifically for the young-onset
patient. Assistance is available in finding or establishing a support group.
United Parkinson Foundation
220 So. State St, Chicago,IL 60604
National Family Caregivers' Association.
10605 Concord St., Suite 501
Kensington, MD 20895-2504
Memberships are $20. yr. for individuals and includes such things as:
"Take Care", an informative mewsletter with advice and resources
CG-to-CG Peer Support Network, to help CG members find a friend in
"The Resourceful Caregiver", a resource guide filled with information
other advocacy and awareness -raising activities.
Costs are in US currency, and Canadian residents are asked to include an
extra $12. for postage.
A call to the 800# will get you a useful free packet of information.
Help for hospital stays:
Willamette-Columbia Parkinsonian Society of Oregon (Will Cope) now has "A
guide to caring for the Parkinson's patient" (FREE) to take with you when
you go to
the hospital. It describes the disease, characteristics of the disease,
complicating factors, advice to speak with nutrition consultant, neuro
advisory and a place for medication schedule. Also a Demerol alert for those
Give Will-Cope a call at . 1-800-485-7384.. (thanks,Helen
The National PD Assn. supports
affiliated Centers of Excellence in 9 other countries:
China, Argentina, The Netherlands, Japan (2), England, France,
Canada (2), and Spain.
Persons interested in knowing more about these centers should call the NPF
at 1-800-327-4545 or write them at 1501 N.W. 9th Ave, Bob Hope Road,
Lending a Helping Hand to At-Home Caregivers, Education, Financial Aid Can
Help Ease Burden For Caregivers by Stan Hinden (Retirement Journal) appeared
in the Washington Post on Sunday, 15th August, 1999. It is worthwhile reading
and includes the following addresses for contact:
National Alliance For CareGiving
Tel: (301) 718-8444
Family Caregiver Alliance
San Francisco. CA
Tel: (415) 434-3388
National Association For Home Care
National Council on the Aging
The National CareGiving Foundation
401 Wythe St. A-3
Alexandria, VA 22314
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